Just Checking In....

Hello All! Its been a while since I last wrote....just have not had much to talk about.  My whole life now is meds.  They tweak this way and that way...Add something here, takeaway there....today I was in the unit for four hours!  Anyway, 3 times a week I have my blood drawn and then, depending on the results, they give me some type of iv. Today it was magnesium.  What happens is that there is constant reactions by my body to the different meds I take....too much of this one and something else goes out of wack.   Well, to make matters worse I still get fatigued easily, have low concentration (hard to read...and no cable/direct in the apt.), have to be very careful with the sun (sunburn could be fatal - instigate graft v. host), and have to wear my gas mask everywhere I go (except in the car and in my apartment). I'm pretty much on survival mode - I do just enough to keep the days rolling and my numbers climbing.  I should be grateful because all indications are that I am progressing well....just have to fix it in my mind that this is an ongoing battle (say, more like Iraq than Grenada)

Me and my friends: meds and the mask.....My noggin seems to have grown - impervious to age, weight loss, chemo and radiation!