This site is about to be shut down. There will be no more new blogs. My life may be headed back in the right direction. Yesterday I received the results from my biopsy and it seems I am AML (leukemia) free. The one caveat is that the doctor did not pull out as much marrow as was necessary (my body seems to be very stingy with the marrow -- it has happened almost every time I've had a biopsy. My Kaiser doctor has had to needle me three different times at one sitting!) so in three months they will retest. Basically I'll have a biopsy done with a bigger needle. Ouch!
The good and the bad: I do not need to wear a mask (except at the hospital), can drive with the window down, drink water from a faucet (and bottled water), eat raw fruits and veggies (except at restaurants), and take a bike ride! I still have to take massive meds, must not work/play in dirt/grass (can golf but must be very careful), need to watch myself around children (easiest way to catch something) and will be very fatigued for a while.
Well, I'm seven days away from a 100 days -- really, my new immune system is still in its infantile stage. All is well. I'll shut this down and bring it back only if I have to reenter the hospital. Thanks for all -- the feedback has been great. In the worst of days when I was in Stanford Hospital the cards/replies meant a lot -- you really don't realize how important people and words are to your well being! Ok, this ship is about to set sail again -- hopefully we see you all soon!
ps -- no pictures again! The computer or the site will not allow me to upload....I had some good ones too.
Thursday, July 29, 2010
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